More than a decade ago, this tragic scenario played out for real.
Young Anthony’s heart had stopped beating, and he was judged to be clinically dead. The boy was air-lifted to Cincinnati Children’s Hospital. While en route, he had 13 electrical shocks applied to his chest in a desperate attempt to revive him. Eventually his heart was shocked back into its beating state; but by that time, severe, irreversible brain damage had occurred.
This preventable and treatable cardiac arrest left Anthony in a coma for more than a year. Once out of the coma, he was left with severe handicaps that will require a lifetime of special care.
The cardiac condition that caused this tragedy is called Wolff-Parkinson-White Syndrome (WPW). Simply described, the syndrome involves an extra piece of muscle woven into the overall mass that creates an electrical short circuit in the heart’s tissue. In some individuals, this condition is benign; in others it can lead to palpitations or tachycardia; but, in a few, as in Anthony’s case, it can be deadly, leading to sudden and unexpected full cardiac arrest.
In the most recent large-scale school screenings, this condition has been identified in up to one child per 100-1000. The good news: WPW is 100 percent curable. A simple procedure, called an ablation, is used to remove the excess heart muscle, which removes all future risk of sudden death.
But how can you detect a disease that may have no symptoms, even right up to last second, just before the onset of cardiac arrest? A simple EKG can make the diagnosis.
Anthony’s parents have chronicled his story in their book “Resurrecting Anthony.” I had the pleasure to meet with this heroic couple during a Fox News interview in which I participated. The following is excerpted from an e-mail that Anthony’s mother, Linda Cole, sent me.
“Dear Dr. Tozzi,
It was such a pleasure meeting you and your wife on Tuesday at Fox. I am quite excited that you are pursuing cardiac screening for children. This would save many families much needless heartache. I also believe that it would save Medicaid dollars in the long run. If nothing else, I hope that parents can at least be educated and given the option of paying for an EKG…”
Anthony’s mom is right. This tragedy could have been avoided in two ways:
- Required early cardiac screening for children
- Rapidly available automated external cardiac defibrillator units at all schools, playgrounds, athletic fields and public places in general.
The alternatives are starkly defined:
By using established EKG technology that costs about $40 per patient, physicians can diagnose and cure virtually all detected incidences of the bad form of WPW in young children, who will go on to lead normal, productive lives. And tragedies like Anthony’s, which can result in subsidized healthcare costs mounting into the hundreds of thousands over a lifetime, can become, literally, a thing of the past.